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Help! Where to start...

Just had a CT scan today and they asked me if anyone has ever told me my organs are reversed? I said no! I am 26 years old and I had no idea. Anyway, I'm waiting for the final report but the...

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Re: Help! Where to start...

Hi, I was also told that my heart and bowel are on the opposite sides to normal. I was 22 then (24 now) and they basically did nothing but tell me that. I only found out because I got scanned for...

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Re: Help! Where to start...

Have you received the help you need? My daughter was just diagnoised and we are getting great care. Let me know If I can help.

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Re: Help! Where to start...

My 6 yr daughter was diagnoised 3 weeks ago. My daughter had a chronic runny nose with allergry prescriptions and repeated ear infections so the path of treatment our daughter's dr took...

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Re: Help! Where to start...

I also forgot that if you have PCD you and you family move into the high risk group and you and your entire family should be given flu shots every year.

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Re: Help! Where to start...

Add.5. Ultrasound of belly to check splene of polysplena which is when you have a splene with little arms.

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Re: Help! Where to start...

If you have situs inversus please read the following info if you have many of these syptoms and experiences you may have Kartagner syndrome/ PCD Primary Ciliary DyskensiaHowever, we suggest the...

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Re: Help! Where to start...

My son now 29 months, was diagnosed with Situs Inversus Totalis when I was 5 months pregnant. He was born 6 weeks premature after 10 days in labor. He spent his first 3 weeks in NICU on a ventilator,...

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